Beyond Diagnosis

Parkinson's

A diagnosis of Parkinson’s can bring uncertainty, questions and many different emotions. This guide has been created by The Sophie Reid Neurological Association to help you understand your diagnosis, feel supported and remind you that you are not alone.

What is Parkinson's

Parkinson’s is a progressive neurological condition that affects movement and can also affect mood, sleep, thinking, speech and many other aspects of daily life. Symptoms vary from person to person, and no two journeys are exactly the same.

Common Symptoms

  • Tremor
  • Slowness of movement (bradykinesia)
  • Muscle stiffness
  • Balance difficulties
  • Changes in handwriting
  • Reduced facial expression
  • Speech and swallowing changes
  • Sleep problems
  • Fatigue
  • Anxiety or low mood
  • Constipation and other non-motor symptoms

What happens after diagnosis?

  • Neurology appointments
  • Parkinson's specialist nurse (where available)
  • Medication planning
  • Physiotherapy
  • Occupational Therapy
  • Speech and Language Therapy
  • Counselling and emotional support

Medication and treatment

Medication is tailored to the individual and may change over time. Taking medication consistently and discussing any side effects with your healthcare team is important. Some people may also benefit from advanced therapies as their condition changes.

Living well with Parkinson's

  • Keep physically active
  • Maintain a healthy routine
  • Prioritise sleep
  • Eat a balanced diet
  • Stay socially connected
  • Plan ahead on more difficult days

Movement, exercise and therapy

  • Regular exercise
  • Strength and balance training
  • Stretching
  • Speech exercises
  • Falls prevention
  • Fatigue management

Looking after your emotional wellbeing

  • Be kind to yourself
  • Accept support
  • Talk openly about your feelings
  • Celebrate progress
  • Connect with others living with Parkinson's

Family, friends and carers

Parkinson’s affects the whole family. Patience, understanding and encouraging independence where possible can make a significant difference to quality of life.

Support available in Jersey

  • SRNA free counselling
  • Peer support groups
  • Advocacy
  • Education events
  • Community activities
  • Signposting to local services