Beyond Diagnosis

Understanding Multiple Sclerosis (MS)

Receiving a diagnosis of Multiple Sclerosis (MS) can bring relief, uncertainty and many questions. This guide has been created by The Sophie Reid Neurological Association to help you understand your diagnosis, find trusted support and remind you that you are not alone.

What is Multiple Sclerosis?

Multiple Sclerosis (MS) is a neurological condition where the immune system mistakenly attacks the protective covering of nerve fibres in the brain and spinal cord. This disrupts the messages travelling through the nervous system and can cause a wide range of symptoms. Everyone’s experience of MS is different.

Understanding the different types of MS

  • Clinically Isolated Syndrome (CIS)
  • Relapsing-Remitting MS (RRMS)
  • Secondary Progressive MS (SPMS)
  • Primary Progressive MS (PPMS)

Recognising the symptoms

  • Fatigue
  • Vision problems
  • Numbness or tingling
  • Weakness
  • Balance and coordination difficulties
  • Muscle stiffness or spasms
  • Pain
  • Cognitive changes (memory and concentration)
  • Mood changes

What happens after diagnosis?

  • Neurology follow-up
  • Disease-modifying treatment discussions
  • MRI monitoring
  • Physiotherapy
  • Occupational Therapy
  • Speech and Language Therapy (if needed)
  • Counselling and emotional support

Treatment and managing relapses

Treatment is tailored to the individual and may include disease-modifying therapies, medication to manage symptoms and rehabilitation. If you think you are experiencing a relapse, contact your MS team or healthcare professional for advice.

Living well with MS

  • Stay active within your limits
  • Manage fatigue through pacing
  • Eat a balanced diet
  • Prioritise sleep
  • Manage stress
  • Stay socially connected

Fatigue, exercise and wellbeing

  • Plan activities around your energy levels
  • Take regular breaks
  • Exercise can be beneficial when appropriate
  • Ask for help when needed
  • Celebrate progress rather than perfection

Family, friends and carers

MS affects more than one person. Open communication, patience and understanding can help everyone adjust to changes together.

Support available in Jersey

  • SRNA free counselling
  • Peer support groups
  • Advocacy
  • Education events
  • Signposting to local services
  • Community activities